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Help us raise money

For participating in Run for ALD, Cure the Boys

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Our story…

Hello family & friends!

Theodore and I were recently diagnosed with a rare genetic disease called X-linked Adrenoleukodystrophy (XALD), which can affect the brain, spinal cord, and adrenal glands. Theodore is currently asymptomatic; however, when and how symptoms present themselves are very unpredictable and vary between males and females, with it being much worse in young males. 

There is no cure for ALD, but there are some treatment options, including stem cell transplant for childhood cerebral ALD. This fundraiser will help fund research at the University of Minnesota, which is home to one of the few ALD centers in the world. Your donation will help advance treatments (and maybe even a cure) for ALD. 

Thank you for your donation!

Love, The Wiener Family

If you wish to learn more about ALD, please visit aldconnect.org or aldalliance.org 

Help us raise money for Knockout ALD

Team members

Click on one of our team members below to make a donation.

Recent donors

Donation date Donor name Donation amount
Nov 22 Irv and Reesa Gottschalk We wish Marv and Jeanne's lovely grandson Theodore and his parents success in this fundraising effort for a cure. $27.48
Nov 22 Maria Ecoff All my best to you and your family, Terry!! $54.10
Nov 22 Phyllis and Ted Bankier Tousman Undisclosed amount
Nov 22 your funniest cousin, t :) love you buddy $54.10
Nov 22 Hillary Wheeler Undisclosed amount
Nov 22 Alyssa Wiener We love you Theodore!!! $107.35
Nov 22 Standards Hazel, Trent, and I love you guys! We are in this journey with you’ $213.85
Nov 22 Levin Family We are rooting for you, Wiener Family! $54.10
Nov 22 Kathy Smith $107.35
Nov 22 Anonymous Undisclosed amount