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Our story…

Help Us Keep Hope Alive for the NF Community in BC

We are at a critical crossroads in the history of the Tumour Foundation of BC. Without immediate funding, we face the heartbreaking reality of closing our doors.

This would mean that thousands of individuals and families affected by neurofibromatosis (NF) in British Columbia would lose their only dedicated source of support, advocacy, and trusted information.

We urgently need to raise funds so we can continue to serve, advocate, and provide resources that families count on every day.

At the same time, our long-term vision remains strong: to establish BC’s first NF clinic, ensuring patients no longer have to manage their complex medical needs alone. Can you imagine your doctor turning to you for guidance on how to treat your condition? That’s the reality for many living with NF in our province.

By donating today, you’re doing more than keeping our doors open—you’re helping shape a better, more supported future for every person in BC living with NF.

Please give today. Your support matters now more than ever.

Description

What is NF and Why Does Your Support Matter?

Neurofibromatosis (NF) is a group of genetic conditions that cause tumours to grow on nerves throughout the body. These tumours can appear anywhere and affect people in many different ways—from blindness, deafness, and chronic pain to learning challenges, disfigurement, and even cancer. Anyone can be born with NF. It affects people of all races, genders, and ethnicities.

How Common is NF?
NF is one of the most common genetic neurological conditions, affecting about 1 in every 2,000 births—that’s around 4 million people worldwide.

Who We Are: Tumour Foundation of BC
Since 1984, the Tumour Foundation of BC has been the leading voice for the NF community in Canada. We are a small but passionate charity making a big impact through:

  • Advocacy for better care and treatment
  • Awareness and education for the public and healthcare providers
  • Peer support groups and 1:1 outreach
  • An annual NF symposium and trusted patient resources
  • Youth scholarships

 Our mission is to improve the health and well-being of individuals affected by NF. Your donation doesn’t just help us stay open—it helps an entire community feel seen, supported, and hopeful for a better future. 

 


Team members

Click on one of our team members below to make a donation.

Recent donors

Donation date Donor name Donation amount
May 19 Jill Goyert Have a good run! Looks like a good cause. Undisclosed amount
May 19 Michelledanny Good luck $107.72
May 18 Maria Good luck Kate! Love from Maria and the late great JC x $48.00
May 17 Anonymous $54.31
May 17 Kim Leong Good luck Donna! $54.31
May 17 Scott & Linda Anderson All the best to you and good luck on your run. $27.60
May 17 Anonymous Way to go Cait! Have fun! Undisclosed amount
May 16 Ryan Appleton $54.31
May 16 Shelley Maley Way to go Colette! $27.60
May 16 Lak gill $25.00