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FSHD Society

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The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy. We have catalyzed major advancements and are accelerating the development of treatments and a cure to end the pain, disability, and suffering endured by one million people worldwide who live with FSHD. The FSHD Society has transformed the landscape for FSHD research, and is committed to making sure that no one faces this disease alone.

Who We Are

The FSHD Society is the world’s largest advocacy and research organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy.

Teams

Teams

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Individuals

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Recent donors

Recent donors
Date Name Amount
May 30 Anonymous $28.10
May 29 David and Laura Mcsweeney Inspirational! Go Calli!! $218.85
May 22 Eddie Wood $55.35
May 21 Anonymous $82.60
May 19 Dylan LeVine Cure FSHD! $109.85
May 17 Dad and Erin To our two beautiful daughters/stepdaughters who inspire us everyday; we're so proud of you! Let's power this path forward! We love you! $1,090.85
May 16 Kara Lesnikowski The most inspiring duo I know!!! $55.35
May 15 Lexi Pappas YAY CALLI!!! $109.85
Apr 20 Luis Alonso Vamos, Bandido! A toda máquina! Undisclosed amount
Apr 13 Tuck $28.10