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Help us raise money

For participating in 9th Annual Dravet Syndrome National Walk

Our story…

Milo was diagnosed with Dravet Syndrome at 6 months old. He is a strong boy who takes on the world with all his might! Always with a smile or little laugh who truly enjoys playing with water and racing his cars! He is a blessing to have in our lives, he brightens your day with just a simple smile or smirk. Although he suffers from countless seizures, you would never know by looking at him. Behind that beautiful smile hides Dravet that can change his world and ours in an instant. Milo is delayed in his speech and other fine motor skills. He is a fighter and works on his skills on a daily basis, with the help of his family. We take it all one second at a time. Thank you all for taking the time and your support. 💜 Feel free to private message for details.

Team members

Click on one of our team members below to make a donation.

Recent donors

Donation date Donor name Donation amount
Aug 12 💜 Sue Voorthuis 💜 Go Milo 💜 $27.80
Aug 12 Edyta $54.63
Aug 11 Anonymous Undisclosed amount