Aidez Michael à recueillir des fonds

My stepdaughter suffers from a rare genetic disorder that affects her in several ways but mostly via the rapid and frequent development of tumours. When she was very young one of these tumors developed behind her eye and she is now blind in that eye. 

Another major symptom is that she has a severe learning disability. Despite all this Lily is a fighter…To show solidarity with Lily, I’ll be participating in her half marathon. Rare diseases like Neurofibromatosis do not get much government funding for research therefore these fundraising events become that much more critical to providing best in class healthcare to the patients suffering from this disease until we find a cure