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FSHD Society

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The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy. We have catalyzed major advancements and are accelerating the development of treatments and a cure to end the pain, disability, and suffering endured by one million people worldwide who live with FSHD. The FSHD Society has transformed the landscape for FSHD research, and is committed to making sure that no one faces this disease alone.

The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy. We have catalyzed major advancements and are accelerating the development of treatments and a cure to end the pain, disability, and suffering endured by one million people worldwide who live with FSHD. The FSHD Society has transformed the landscape for FSHD research, and is committed to making sure that no one faces this disease alone.


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Recent donors

Recent donors
Date Name Amount
Aug 18 Anonymous $109.85
Aug 17 Anonymous Undisclosed amount
Aug 17 Anonymous Undisclosed amount
Aug 17 Anonymous $55.35
Aug 16 Christine Keane $28.10
Aug 13 Sondra Papatsoris $55.35
Aug 13 Steve and Maureen Flynn Go Team Donahue!! $109.85
Aug 12 Anonymous Go Donny Go Jumbos! Undisclosed amount
Aug 12 Ashley Ockerbloom Go Liz!! 💕 $11.75
Aug 11 Anonymous Undisclosed amount