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FSHD Society

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The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy. We have catalyzed major advancements and are accelerating the development of treatments and a cure to end the pain, disability, and suffering endured by one million people worldwide who live with FSHD. The FSHD Society has transformed the landscape for FSHD research, and is committed to making sure that no one faces this disease alone.

The FSHD Society is the world’s largest advocacy and research organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy.
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Teams

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Recent donors

Recent donors
Date Name Amount
Jul 20 Tom and Linda Wesley Thank you Carolyn for running and all the support you give to Chelsea! $109.85
Jul 20 Patricia Hartlove $11.75
Jul 20 Happy Gilmore You Can Do IT Happy! $109.85
Jul 19 Rogan & Taika Moeller $327.85
Jul 19 Lajoie crew We love you Chels! RUN CAROLYN RUN ❤️ Undisclosed amount
Jul 19 Bob & Stephanie Moore $55.35
Jul 19 Jess Wright Thank you for doing this run for Chelsea! Undisclosed amount
Jul 17 Anonymous Undisclosed amount
Jul 17 Madeline Billeaud $11.75
Jul 17 Lauren Meyers $11.75