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FSHD Society

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The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy. We have catalyzed major advancements and are accelerating the development of treatments and a cure to end the pain, disability, and suffering endured by one million people worldwide who live with FSHD. The FSHD Society has transformed the landscape for FSHD research, and is committed to making sure that no one faces this disease alone.

The FSHD Society is the world’s largest advocacy and research organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy.
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Teams

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Recent donors

Recent donors
Date Name Amount
Aug 08 SaSa Joyce Good luck 💚🍀 $28.10
Aug 08 Momo #1 (Nora Joyce) 😃 Good luck 🩷💚 $109.85
Aug 06 Kevin and Mikal $55.35
Aug 06 Sydney Cheverie Go girl!!!! Im so proud of you!!! $55.35
Aug 06 Michael Hertner It was great to meet and spend time with both of your families when Rob and I came to Maine for the Half Ironman. You all are awesome! $109.85
Aug 05 Mary Rico Best of luck Caitlin! $28.10
Aug 05 Mary & Mark Maclean We are very proud of you! Undisclosed amount
Aug 05 Alex Tragellis $28.10
Aug 05 Ken Flagg Good luck $273.35
Aug 04 The Carson Family $55.35