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FSHD Society

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The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy. We have catalyzed major advancements and are accelerating the development of treatments and a cure to end the pain, disability, and suffering endured by one million people worldwide who live with FSHD. The FSHD Society has transformed the landscape for FSHD research, and is committed to making sure that no one faces this disease alone.

The FSHD Society is the world’s largest advocacy and research organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy.
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Recent donors

Recent donors
Date Name Amount
Aug 16 Emily, Jen, and Margaret Wow look at Carolyn go! Undisclosed amount
Aug 16 Jenny ❤️❤️ $109.85
Aug 15 Casey $85.87
Aug 15 Sarah C We love you Chelsea and Carolyn! $950.00
Aug 15 The Grennons Good luck !!!! 🏃‍♀️👏👏👏 $109.85
Aug 15 Anonymous Good luck and have fun. Undisclosed amount
Aug 15 The Pepe’s $28.10
Aug 15 Brezinas Good luck! $28.10
Aug 15 miaaa cheering you on from afar🤍🤍🤍 $28.10
Aug 15 Enola Gay $55.35