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FSHD Society

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The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy. We have catalyzed major advancements and are accelerating the development of treatments and a cure to end the pain, disability, and suffering endured by one million people worldwide who live with FSHD. The FSHD Society has transformed the landscape for FSHD research, and is committed to making sure that no one faces this disease alone.

The FSHD Society is the world’s largest advocacy and research organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy.
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Recent donors

Recent donors
Date Name Amount
Aug 15 Will Grant $11.75
Aug 15 Bryn Undisclosed amount
Aug 14 Dana Lazowski Undisclosed amount
Aug 14 Oli Peepee poopoo $109.85
Aug 14 Anonymous Go Alyssa! Undisclosed amount
Aug 14 Chase Pantelis Give em hell out there! $28.10
Aug 14 Torin Ford Your boyfriend made a very compelling argument to donate. Go crush the race !! 🏃 $28.10
Aug 14 Jacob Grossi-Hogg $28.10
Aug 14 Casey Love you! Undisclosed amount
Aug 14 Mary Keber You go girl! $66.25