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FSHD Society

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The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy. We have catalyzed major advancements and are accelerating the development of treatments and a cure to end the pain, disability, and suffering endured by one million people worldwide who live with FSHD. The FSHD Society has transformed the landscape for FSHD research, and is committed to making sure that no one faces this disease alone.

The FSHD Society is the world’s largest advocacy and research organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy.
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Recent donors

Recent donors
Date Name Amount
Jul 17 Lauren Meyers $11.75
Jul 17 Courtney Dye 🏃‍♀️🏃‍♀️ $55.35
Jul 17 Juliana Barrus $55.35
Jul 14 Ryan Moeller $273.35
Jul 14 Paul & Laura Carolyn, thank you for every thoughtful way in which you (and your family) support Chelsea (and her family)! Much love to you! $273.35
Jul 14 Anonymous Undisclosed amount
Jul 14 Lajoie Fam Go get em Carolyn $273.35
Jul 14 Hoitt Family In memory of William T and William G Michael $109.85
Jul 14 Colleen Foley LETS GO ALYSSA!!!! I’m so proud of you!!! $109.85
Jul 10 Tom Quirk Undisclosed amount