Skip to main content

FSHD Society

Raise money for FSHD Society

The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy. We have catalyzed major advancements and are accelerating the development of treatments and a cure to end the pain, disability, and suffering endured by one million people worldwide who live with FSHD. The FSHD Society has transformed the landscape for FSHD research, and is committed to making sure that no one faces this disease alone.

The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy. We have catalyzed major advancements and are accelerating the development of treatments and a cure to end the pain, disability, and suffering endured by one million people worldwide who live with FSHD. The FSHD Society has transformed the landscape for FSHD research, and is committed to making sure that no one faces this disease alone.


Teams

Teams

Click on a team below to make a donation.

Individuals

Click on an individual below to make a donation.

Recent donors

Recent donors
Date Name Amount
May 28 Haley 🫶🏼 $28.10
May 25 Marie Donahue $55.35
May 25 Elizabeth Donahue $55.35
May 23 Jon Maschio Sending all my love to you, your brother, and your family! Undisclosed amount
May 22 Anonymous Go Em!!! Undisclosed amount
May 22 Stuart Cohen Alec COHEN running for his brother Dr. Justin Cohen who has FSHD $109.85
May 22 Jeff & Barbara Run Em Run $109.85
May 22 Brian Quinn $109.85
May 19 Matt + Julie Big *applause* for your run for this cause! Undisclosed amount
May 18 Peter Lynch $28.10