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FSHD Society

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The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy. We have catalyzed major advancements and are accelerating the development of treatments and a cure to end the pain, disability, and suffering endured by one million people worldwide who live with FSHD. The FSHD Society has transformed the landscape for FSHD research, and is committed to making sure that no one faces this disease alone.

The FSHD Society is the world’s largest advocacy and research organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy.
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Recent donors

Recent donors
Date Name Amount
Aug 12 Amy Hoffman Undisclosed amount
Aug 12 Bushra wooooo!!!! goo aleeeyyssyaaaa!!!!! Undisclosed amount
Aug 12 Ellen Martirano $28.10
Aug 12 Kaitlin Gorman Go Alyssaaaaa!! $22.65
Aug 12 Shannon Cyr Love you Lyss! $6.30
Aug 10 The Moeller-Wesley Family Thank you for ALL the ways you make the journey more enjoyable, life more adventurous, and the future brighter. We ❤️ you! Undisclosed amount
Aug 10 Anonymous Undisclosed amount
Aug 08 SaSa Joyce Good luck 💚🍀 $28.10
Aug 08 Momo #1 (Nora Joyce) 😃 Good luck 🩷💚 $109.85
Aug 06 Kevin and Mikal $55.35