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FSHD Society

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The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy. We have catalyzed major advancements and are accelerating the development of treatments and a cure to end the pain, disability, and suffering endured by one million people worldwide who live with FSHD. The FSHD Society has transformed the landscape for FSHD research, and is committed to making sure that no one faces this disease alone.

The FSHD Society is the world’s largest advocacy and research organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy.
Teams

Teams

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Individuals

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Recent donors

Recent donors
Date Name Amount
Jul 24 Nora Salaris Good luck !! $545.85
Jul 23 Sean, Jenn, Cam & Drew Turnbull Love that you are doing this. Billy and Uncle Bill mean so much to us. Wishing you the best on race day! $109.85
Jul 23 Anonymous $250.00
Jul 22 Lois Ayotte $109.85
Jul 21 Erin Shea Have a great run! $55.35
Jul 21 Kristin DeArruda Wharton For Billy! ❤️ $28.10
Jul 21 Pam LeBlanc Good luck Alyssa!! Such a great cause. I hope a cure is found. $28.10
Jul 21 Ana Severino $28.10
Jul 21 Anonymous I’m so proud of you and love you to the moon and back💕 Undisclosed amount
Jul 21 Rina Patel $50.00