Description
Our Promise
No one should face FSHD alone. The FSHD Society is dedicated to accelerating research toward treatments and a cure while supporting individuals and families every day. This vital work is made possible through the generosity of our community—patients, families, volunteers, and donors who share our vision of a world without FSHD.
Our Mission: Find treatments and a cure for FSHD while empowering families.
Our Core Values: Research | Community | Urgency
Team members
Click on one of our team members below to make a donation.
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Carolyn Neilson
Raised: $7,863.53
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Race to Cure FSHD
Raised: $3,051.25
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David Bustamante
Raised: $2,630.70
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Liz Allen
Raised: $1,332.60
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Amanda Hughes
Raised: $1,034.45
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Ellie Innes
Raised: $850.70
Recent donors
| Donation date | Donor name | Donation amount |
|---|---|---|
| Aug 13 | Matilde Reyes | $109.85 |
| Aug 13 | Familia Reyes Atha | $109.85 |
| Aug 13 | Sarah and Meredith | Undisclosed amount |
| Aug 13 | Bob Jackman | $55.35 |
| Aug 13 | Chelsea, Travis, Charlie and Del | $500.00 |
| Aug 13 | Nicole McSweeney | $109.85 |
| Aug 12 | Libby Bowers | $28.10 |
| Aug 12 | Blaire and Mama H | $109.85 |
| Aug 12 | Anonymous | Undisclosed amount |
| Aug 12 | Lucia Celona | $109.85 |
