Donate to help FSHD Society raise money for The 2025 ASICS Falmouth Road Race’s fundraising campaign, on August 17, 2025

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FSHD Society

Raised: $16,818.58

Goal: $20,000.00

84%

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Description

Our Promise

No one should face FSHD alone. The FSHD Society is dedicated to accelerating research toward treatments and a cure while supporting individuals and families every day. This vital work is made possible through the generosity of our community—patients, families, volunteers, and donors who share our vision of a world without FSHD.

Our Mission: Find treatments and a cure for FSHD while empowering families.

Our Core Values: Research | Community | Urgency

Team members

Click on one of our team members below to make a donation.

Carolyn Neilson

Raised: $7,863.53
Race to Cure FSHD

Raised: $3,051.25
David Bustamante

Raised: $2,630.70
Liz Allen

Raised: $1,332.60
Amanda Hughes

Raised: $1,034.45
Ellie Innes

Raised: $850.70

Recent donors

Donation date	Donor name	Donation amount
Aug 12	Adam Yay Ellie!!!	$109.85
Aug 12	Sarah and Charlie's bracelet brigade! Thank you to all of those that contributed to Sarah and Charlie's bracelet making fundraiser. You made a HUGE difference.	$510.00
Aug 11	Alison Innes Good luck...you got this!	$273.35
Aug 09	Team Harrison Thank you for supporting this cause. We are a family of FSHD as well.	$55.35
Aug 09	Anonymous Go Calli Go!!!	Undisclosed amount
Aug 08	Anonymous To my favorite runner ❤️	$28.10
Aug 07	Donna Hughes	$398.70
Aug 07	Crutch Go Liz!!!	$55.35
Aug 06	Anonymous Proud of you, Carolyn!	Undisclosed amount
Aug 06	KC Ford	$109.85

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FSHD Society

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Description

Our Promise

Team members

Carolyn Neilson

Race to Cure FSHD

David Bustamante

Liz Allen

Amanda Hughes

Ellie Innes

Recent donors