Description
Our Promise
No one should face FSHD alone. The FSHD Society is dedicated to accelerating research toward treatments and a cure while supporting individuals and families every day. This vital work is made possible through the generosity of our community—patients, families, volunteers, and donors who share our vision of a world without FSHD.
Our Mission: Find treatments and a cure for FSHD while empowering families.
Our Core Values: Research | Community | Urgency
Team members
Click on one of our team members below to make a donation.
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Carolyn Neilson
Raised: $7,863.53
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Race to Cure FSHD
Raised: $3,051.25
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David Bustamante
Raised: $2,630.70
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Liz Allen
Raised: $1,332.60
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Amanda Hughes
Raised: $1,034.45
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Ellie Innes
Raised: $850.70
Recent donors
| Donation date | Donor name | Donation amount |
|---|---|---|
| Aug 05 | The Jonases | $109.85 |
| Aug 05 | From Papa Rex in honor of Rogan, Charlie and Taika | $600.00 |
| Aug 04 | SAP | $666.40 |
| Aug 04 | Pearson Clark | $109.85 |
| Aug 04 | The Granthams | $55.35 |
| Jul 29 | Alisha P | $109.85 |
| Jul 27 | Emely Pring | Undisclosed amount |
| Jul 27 | Diane Pappas | Undisclosed amount |
| Jul 27 | Peg Malumphy | Undisclosed amount |
| Jul 26 | Stef & Kyle | $55.35 |
