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Jett Foundation

Raise money for Jett Foundation

Jett Foundation empowers people and families impacted by Duchenne muscular dystrophy through the development of transformative programming, educational opportunities, and ongoing support for every stage of a Duchenne journey.


Jett Foundation is a beacon of hope and a deeply trusted resource within the Duchenne muscular dystrophy community. Its commitment goes beyond conventional support, providing one-of-a-kind, transformational direct services and wrap-around support for every member of the family impacted by Duchenne.


Jett Foundation was established in 2001 when Jett McSherry was diagnosed with Duchenne at the age of five. His parents wanted to help other families dealing with the devastating news following a Duchenne diagnosis. 


Jett Foundation proudly employs 11 full-time and 1 part-time staff, who work tirelessly alongside an incredible force of over 300 passionate volunteers. Together, they serve more than 4,000 individuals annually across the US. Jett Foundation is driven by the belief that no family should face Duchenne alone, providing the comprehensive support needed to navigate challenges and embrace brighter futures.


Currently there are 20,000 patients in the US living with Duchenne and Massachusetts, where Jett Foundation is headquartered, has become a hub of clinical care, with 600+ families traveling from all over the United States to receive care here. Today, Jett Foundation is in the early stages of a Capital Campaign, to build Jett’s Place, a first-of-its-kind wellness and retreat center for individuals who are living with physical disabilities.

Duchenne muscular dystrophy (DMD) is the most common fatal pediatric disorder. This progressive neuromuscular disorder leads to a loss of motor, pulmonary, and cardiac function, ultimately resulting in premature death.


Jett Foundation empowers people and families impacted by Duchenne muscular dystrophy through the development of transformative programming, educational opportunities, and ongoing support for every stage of a Duchenne journey.


Community Programs & Resources:

  • Camp Promise: A free, one-week summer camp offered at seven (7) locations nationwide for youth and young adults with rare neuromuscular disorders.

  • Jett Giving Fund: A vital assistance program with three branches:

    • The Accessible Vehicle Fund helps families obtain safe, accessible transportation.

    • The Emergency Fund provides grants to families facing unexpected, emergency situations.

    • The Equipment Assistance Fund assists families with small accessibility or medical items not covered by insurance or that are too expensive.

  • Family Workshops: A national educational workshop series that allows families to learn about Duchenne care, resources, and treatments from local clinicians, experts, and industry partners.

  • National Community Ambassador Program: This program offers parents, friends, and family members of individuals impacted by Duchenne the opportunity to share resources, educate within their community, and facilitate local support groups and events for parents and families.

Falmouth Road Race athletes activate their muscles in support of Jett Foundation's work, bringing impactful awareness & raising funds for our community. 


Thank you for supporting Jett Foundation's dedicated athletes at the Falmouth Road Race! We can't do this without you.


Jett Foundation, Inc. is a 501(c)3 registered tax-exempt nonprofit organization. Our Federal Tax ID is 04-3563445.


Teams

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Individuals

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Recent donors

Recent donors
Date Name Amount
May 31 Gaudenzi family Thank you Ed for supporting our sons ! $109.85
May 31 Bob Fouhey Cheering you on Ed. Hope you have great weather on race day. $109.85
May 31 U Good luck, Ed! Thank you for doing this! $55.35
May 31 Lynne Owen Run Martha run!! $109.85
May 31 Sandy Busa Good luck Ed! I had a student with this diagnosis so wish you the best in helping this cause. $55.35
May 30 Costa S Leotsakos Crush it Eddie $109.85
May 24 Lynn Lebiecz Good Luck. Thank you for your efforts to support and bring attention to this very worthy foundation. $109.85
May 23 Wallace E Samuelson Jr $273.35
May 20 The Feigh Family $120.00
May 20 The Feigh Family $120.00